About Clot Connect

Blood clot awareness: What you can teach others

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"Blood Clots: Talk About It" Campaign to increase education and awareness

talking points imageThe precise number of people affected by deep vein thrombosis (DVT) and pulmonary embolim (PE) is unknown, but estimates by the Centers for Disease Control (CDC) range from 300,000 to 600,000 each year in the United States.  Estimates suggest that 60,000 to 100,000 Americans die of DVT and PE each year.  Many of those deaths are preventable.  Yet, only about six percent of people know what DVT and PE is or how it can be prevented.

Given how common DVT and PE are, imagine if a small fraction of people affected by clots were to tell their story to someone else—sharing their personal experience with the intent of encouraging blood clot education and awareness.  How many lives might be touched and saved by the simple act of talking about blood clots openly.   That is the thought behind Clot Connect’s  ‘Blood Clots: Talk About It’ campaign. 

Clot Connect receives inquiries from patients who have survived a blood clot, ‘how can I get involved to help others?”   If you have experienced deep vein thrombosis (DVT) or pulmonary embolism PE), your personal story can be a powerful example to educate those around you.  If you tell one person and they tell one person, imagine how far your simple act of talking about it can reach.  

Clot Connect has created a “Blood Clot Talking Points:  What you can teach others” document which provides facts about blood clots you can use when sharing your own experience with others.  The document is intended to provide general information and statistics about blood clots and clotting disorders so you can help educate others.  It is not intended to be medical advice and is not a substitute for seeing a physician.  If you or someone you know show signs and symptoms of a blood clot, please seek medical attention right away.

In the Talking Points document, you will find information on:

  1. What is a blood clot?  Terms and definitions
  2. Symptoms and risk factors for blood clots.
  3. How many people are affected by blood clots?
  4. What are the effects of blood clots for survivors?
  5. Blood clots:  low public awareness, little support for patients
  6. How can you be a proactive person about blood clots?
  7. What is Clot Connect?  Our program activities and how to make a donation.
  8. How to learn more about blood clots.
  9. How you and others can get involved to promote blood clot awareness.
  10. Takeaway messages  and a flyer you can use to share information about symptoms and risk factors


“Blood Clot Talking Points:  What you can teach others” guide is available here.